Hello David,
your story is such unbelievable and I feel so sorry for you. I read the whole thread and did I get it right that you don't have visible marks on you face but you are photosensitive and in the sun you feel the burning sensation?
I am a pale skin type and i had tolerate the sun moderately in the past, since I used retinoid (only for 6 weeks) two years ago I am much more photosensitive. Within 5 min. without sunscreen I got a sunburn. So, I think for so many people retinoids are safe and they respond well to it, but in may case it was not worth the try and it triggered the photosenitivity . And this is why I am so cautious use the dermaroller since the scientist also doesn't know 100% how the whole procedure works. They are no long term studies.
David, did you try emu-oil or do you search for something that would calm your burning sensation? Did you think about detoxing your body? In Germany, where I am from, we have alternative practitioner and they are more on the holistic approach and try to heal with natural resources. Maybe worth a try?
From what I read, you are a strong person and I am sure you find a way to fix your problem. Keep going and bothering the doctors and don't stop until you find the right person or method that can help you.
I wish you all the best and keep us updated.
I hope, you could understand everything, since my English is in need of improvement
Best regards,
lola